THE BMHA

BMHA is a self-help patient group set up to support those affected by Malignant Hyperthermia.  It is a national registered charity run entirely by volunteers whose family has been affected by MH.  Members of the Leeds MH Unit also serve on the management committee.  BMHA helps fund research at the Leeds MH Investigation Unit and their associates - specifically genetic research.  Administrative costs are kept to a bare minimum.   The Emergency Hotline was provided by BMHA and its continuing use is made possible by funds from the Association.  Our Aims & Objectives are shown on an earlier page.

The BMHA exists to help people affected by MH.  It was founded in 1982 by Alison Winks, following the death of her son John, due to MH.   It was his 7th operation.  He was 7 years old.

Benefits of BMHA Membership

• Medical Emergency discs for those susceptible and family members
• Newsletters            
• Vital Medical Information Leaflet
• Emergency Hotline
• Hospital admission information         
• Helpline services -
  Members only (01773 717901)
• Foreign MH centre addresses & Hotlines (34 centres in 21 countries)
• Foreign translations (17 languages)
• Up to date information from MH experts regarding drugs, new testing procedures, work with other MH testing centres
• Information about problems which may affect children or other relatives
• Annual meetings
• Help to fund MH research, especially the pioneering genetic research by the Leeds group
• Regional Link Representative (some areas of the country only)

 

How to join BMHA

Anyone can join BMHA.  The joining fee is £15.00 which includes

• 1 year’s membership
• A New Member pack of information leaflets
• A copy of our last newsletter

A reminder will be sent towards the end of the year to remind you that your subscription is due.  Currently, the annual membership renewal is £10.00.

Once a member, you can also obtain Medical Emergency discs from us at a cost of £9.50 each.

Other items, are also available to members, often at no extra charge.  These include foreign translations and an information leaflet for schools.

You can either download an application form click here
or ask for one by e-mail from our Membership Secretary:- helpline@bmha.co.uk

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